Peripheral Neuropathy and It's Symptoms

not much on discussion regarding it, but have any one tried the light laser therapy I think it is called and has it worked for any one. ? not sure how a laser solves or helps out, but the articles make it sound good. But I want to know some one that actually did it.

Don't know what you are talking about, can you check on the name again...I would be interested!

I found a new site that is super for information www.NeuropathySupportNetwork.org for info. e-mail info gene@NeuropathySupportNetwork.org Eugene B. Richardson is president of the support network. I contacted the site and he sent me a free DVD that was a Seninar he had given titled Coping With Chronic Neuropathy He is a LtCol.US Army (Retired), professional counselor,and Neuropathy patient. The seminar was awesome and full of information relative to everyone. He is so positive and understanding because the stories are about many of his trials and tribulations to find a MD that would believe what was going on with him. I found this very interesting as many of the same things are happening to me and from what I gather several of you on the site. He recommends several books from Amazon for good reads which I have ordered and am patiently waiting their arrival. His neuropathy is from agent orange ours would be from chemo, the cause is different but the resulting damages are the same. I would recommend contacting him to get the free DVD...it will be worth your time!

What a great thread Rascal, so helpful!

Thanks Rascal.Been getting this pain off and on for a short time.

I think people would be suprised to know that after chemo when they have the muscle weaknes and they can't seem to regain their previous strength that that could be peripheral neuropathy, NOT deconditioning as most MD's will say because if they don't do an EMG they wouldn't know...but you will! Not all neuropathy causes pain...interesting.

Tman's difficulty breathing could very likely be caused by this, In this seminar and with the handouts he talks about the different kinds of neuropathy...actually quite complicated!

Since I got dose-intensive vincristine, yeah, I have PN. Feet are worse, but I still function OK. A good thing it is that I do not drink, as I cannot walk a line even sober. My hands are less affected than my feet, but I do fumble and drop things more than I used to. I have just learned to grasp things more consciously, focusing on the grip that I have on them. I was a klutz before, so it is not a night and day difference!

I do not have pain, but numbness and occasional tingling. When I wake up, my fingers feel like there is a slinky-like spring in each one that vibrates if I touch something. It is an odd sensation that dissipates as I become active around the house. it is usually gone within a few minutes.

i am doing nothing about it for two reasons: 1. my nerves heal slowly, if at all. I am still waiting for the sciatic nerve in my left leg to regenerate after spinal surgery in 2002 and 2004! Secondly, I am so delighted to simply be alive that I dare not complain about anything.

Oh I don't find this complaining but informational to everyone. Many MD's don't understand what is going on and many people are far worse off. I cried when I listened to the DVD as it was describing me so well I couldn't believe it. Don't get me wrong I would do it again for my life but it has drastically changed how I have to do things and not do things. The DVD also showed me another completely different way of looking at my "new me". Something I had not done just yet, I have accepted that thinkg are going to be different but I was still working on trying to gain things back and I know some will and some won't , he gave ideas of what to do to optimize things as my neurologist said things could change up to 2 years after treatments and I want to help them along as much as possible. For some reason the medical world kinda says you have polyneuropathy from your chemo but there's not much we can do for it now. And go about trying to deal with other things. This seminar talked about many things that can turn around your life and give you new hope. It changed my thinking from I can no longer do that to I can do that just not ready yet! To me I like the sound of that much better!

Hope your neuropathy improves for you! Have a great day!!

Rascal, I haven't looked at the website yet, but copied it and sent to my work e-mail. From everything you're saying I think this information will be very useful to a lot of the people I work with. Thank you!

Like I said the DVD is free and made me cry because he is right on with what you have for symptoms. I haven;t recieved the books yet but I am anxiously waiting for them. He says they are a must read and I think he would know. He ended up being lot's worse that I am but has rebounded back due to things he has researched and done and is now sharing. I am excited about this because my MD has acknowledged that I have it but other than Lyrica and Gabapentin, which I couldn't take due to the side effects, they don't really offer anything else for help other than disability! And that's where I am now! Hope it helps for your work that would be great!